Trisha Lewis appealing for support for victims of ‘butterfly skin’

Emma Fogarty with Kilbehenny's Trisha Lewis, who are appealing for walkers for StepTember to raise fund for Debra. (Picture: Michael Scully)

Kilbehenny native, chef, influencer and all-round motivator Trisha Lewis, is calling on the public to join her for a 10,000 steps-a-day challenge next month.

The Steptember drive is in aid of the charity Debra Ireland, which supports those with the condition Epidermolysis Bullosa (EB), also known as butterfly skin.

Trisha has teamed up with the charity’s ambassador Emma Fogarty, who was born with EB. It is a genetic disease that causes the skin, both inside and out, to blister at the slightest touch.

For Emma, it means that around 80% of her body is covered in open wounds and must be bandaged every single day, a process which could take up to five hours.

Following a recent health setback, she now uses a wheelchair.

Full story in this week’s Print & Digital Edition