A Cork family are to appear on ‘Big Life Fix’ series this Wednesday, March 18 on RTÉ One at 9.35pm.
Engineer Shane Phelan meets 3-year-old (now 4 years) Alana Reid Sochan in Cork. Alanna has butterfly syndrome and her parents need to be constantly vigilant.
If she even lightly touches or brushes against something the wrong way, it can result in a serious wound or blister. If she scratches her skin while she sleeps, she could cause irreparable damage. Her parents are monitoring her 24-hours-a-day.
Can Shane build a system that allows her to safely sleep in her own room? Alana hasn’t been able to play outside lately, as her parents can’t find shoes that will fit over her bulky bandages.
Shane gathers a team of experts, but can they create something comfortable and safe for Alana to walk in?