Claire Devaney of Bright Sparks, presenting Sandra Quinn with a cheque for the Irish Motor Neuron Disease Association. Also pictured are children from the Easter camp and Treasa Cahill.

At the end of February, I decided to take on a strange and unusual fundraising task to stay quiet for 30 hours to raise funds for the Irish Motor Neurone Disease Association.

Since I learned to talk, I have always been chatty and given my profession, it is something that always fits in quite well with what I do, so to take on a day and a half of committed silence was quite a big deal. It was something that I wasn’t sure I would be able to do, to be quite honest.

The Voice4MND campaign asked people to stay silent for 30 minutes, but I decided to take this further by doing it for 30 hours instead.

I have interviewed many people affected by this horrible disease and there is no cure. It can hit anyone of any age and will affect the way a person eats, breathes, drinks, talks and walks.

It was a strange and unusual experience, as I couldn’t communicate in any way and was relying on the correct interpretation of my eye movements to let people know what I was trying to say …


Full story in this week’s Print & Digital Edition